Lorenzo is a baby suffering from Prader Willi Syndrome. The goal is to publish a children's book that tells his story and highlights the importance of early detection and visibility of rare diseases.

CHF 4’307

107% of CHF 4’000

107 %
This is how it worksä

The «all or nothing» principle applies: The project only receives the funds if the funding target is reached or exceeded.

78 backers

Successfully concluded on 10/10/2021

Normalization and visibility of rare diseases.

Prader-Willi syndrome is a complex genetic condition that affects many parts of the body. In infancy, this condition is characterized by weak muscle tone (hypotonia), feeding difficulties, poor growth, and delayed development. Prader-Willi syndrome affects an estimated 1 in 10,000 to 30,000 people worldwide.

Like all rare diseases, the well-being of the patient is linked to a controlled environment and specialized support. Early detection is vital to establish an action protocol that improves the quality of life of the patient and their families, and awareness and visibility are essential for society to understand their behavior and know how to act accordingly.

  • Amigurimi Lorenzo by Markymoon
    Amigurimi Lorenzo by Markymoon
  • Illustration by Carla Álvarez
    Illustration by Carla Álvarez
  • Illustration by Carla Álvarez
    Illustration by Carla Álvarez

Children's book designed by children.

The illustrations in the book are made by Carla Álvarez, a 12-year-old girl with incredible talent and sensitivity. The book will be published in three languages, Spanish, French and German, in order to reach the largest possible number of readers.

Fair price for a fair job.

Did you know that many novice writers who manage to publish through publishing houses can receive only 2% of the sale of each book plus a small fixed amount for the rights to their novel?

In an increasingly globalized world, the large communication companies have managed to lower the cost of the work of authors, copyeditors, editors and illustrators.

Consequently, we have become used to buying very cheap, in most cases sacrificing the quality of the product. The role of these professionals is essential to obtain a quality book, which can hardly cost € 5.

Professionals from different parts of the world participate in this project, and your contribution will be destined to pay them fairly for their work: illustration, design, editing, layout and distribution expenses.

In addition, a part of the benefits of the book will go to the Prader Willi Syndrome association in Switzerland.